by Andi Last Recently, ABC Television’s The Good Doctor featured a woman receiving the news that she has LFS: “It’s called Li-Fraumeni syndrome, LFS. An
Choroid Plexus Brain Tumors are highly associated with Li-Fraumeni Syndrome. The choroid plexus is within each ventricle in the brain; a series of vessels and tissue
“If you were me what would you do?” Working as a nurse, I have been asked this question so many times. It wasn’t until I
Odds are that Li-Fraumeni Syndrome is THE most devastating hereditary cancer syndrome that you have never heard of, unless of course you know one of
What is Genetic Counseling? Genetic Counselors are a group of professionals with a Master’s level degree who work in clinics, hospitals, public health and private
One big concern that many have when considering genetic testing for hereditary conditions like Li-Fraumeni Syndrome is if they will be discriminated against by insurance
Research articles often are difficult for the average person to understand. One of our goals at living LFS is to help make this information easier
One of the big complaints with rare syndromes is that there aren’t enough clinical studies to address our needs. PROMPT is a study that combines
In 1967, Dr. Li, Dr. Fraumeni and Dr. Miller were chatting socially at the NIH. In the course of conversation, a particular family popped up.
The day was warm, which was quite surprising because Bethesda had just gotten 7 inches of snow the day before. My flight out of Greensboro
