by Andi Last Recently, ABC Television’s The Good Doctor featured a woman receiving the news that she has LFS: “It’s called Li-Fraumeni syndrome, LFS. An
Support LFS Hardship Grants by ordering an LFS Awareness Day Elephant Shirt! But… why elephants? The TP53 gene is a tumor-suppressor gene, often called “the
by Fannie Lemay I always loved to work. Even when I was cutting carrots at IGA for a living, I loved it. Well, maybe “love”
I was diagnosed with a stage 4 Osteosarcoma in my right knee aged 19. It had spread to my lungs and the tumour was the
by Andi Last – I am part of a group of people with a rare genetic condition called Li-Fraumeni syndrome (LFS). You’ve heard of the
“If you were me what would you do?” Working as a nurse, I have been asked this question so many times. It wasn’t until I
1969, SOFT TISSUE SARCOMAS, BREAST CANCER- A FAMILY SYNDROME? In 1969, Dr. Joseph Fraumeni and Dr. Frederick Li were working at the National Institutes of
Living with LFS has many challenges, stresses, and choices. We do not get to choose our DNA or IF we will get cancer. We can
Women with Li-Fraumeni Syndrome have close to 100% chance of developing cancer in their lifetime. About half of all these cancers develop before age
Generally, everyone should be cautious around radiation, but also realize radiation is all around us. When we are diagnosed with LFS, one of the first
