In 1969, Dr. Frederick Li was having a casual conversation with a couple of colleagues at the National Cancer Institute. He became intrigued by hearing
Recently in the private Li-Fraumeni Syndrome support group, there was a question about the difference between PET scans and MRI’s and which was better. The
My husband laughs that I often mix up my idioms. It’s not rocket surgery I tell him. A few years ago I had a sarcoma
March is Colorectal Cancer Awareness Month. Although colon and rectal cancers(CRC) are not classified as core LFS cancers(Brain, Breast, Sarcoma and Adrenal), we are seeing
On February 14, the LFS community lost one of our family. Karly Hurst was well known within the LFS support group for her positive attitude
The day was warm, which was quite surprising because Bethesda had just gotten 7 inches of snow the day before. My flight out of Greensboro
Rare Diseases Day started several years ago as an awareness campaign built on the idea that there is strength in numbers. There is power in
MDAnderson recently announced the beginning of a clinic for patients with Li-Fraumeni Syndrome at their cancer center in Houston, Texas. The Program is called LEAD-
http://www.dana-farber.org/uploadedFiles/Library/adult-care/treatment-and-support/centers-and-programs/cancer-genetics-and-prevention/li-fraumeni-whole-body.pdf
MD Anderson recently announced the beginning of a clinic for patients with Li-Fraumeni Syndrome at their cancer center in Houston, Texas. The Program is called
