Generally, everyone should be cautious around radiation, but also realize radiation is all around us. When we are diagnosed with LFS, one of the first
Few things are more frustrating than looking for answers and getting the response- we don’t know. Sometimes, a person agonizes over the decision to be
World Rare Disease Day is February 29, 2016. Living LFS is teaming up with Global Genes to raise awareness about Li-Fraumeni Syndrome and Rare Diseases.
[pdf-embedder url=”https://livinglfs.org//wp-content/uploads/2016/01/LFS-Final-Project-Jennifer-Mallory-copy.pdf”] A few months ago, I had the opportunity to take an online course entitled Introduction to the Science of Cancer offered by the
I had the good fortune of attending the Wyss Family Hereditary Brain Tumor Symposium in Columbus hosted by Nationwide Children’s Hospital. While most people would
There have been 2 conferences in the past 5 years that included people living with LFS. As inspiring as it was to learn more about
Living with LFS can present challenges to the healthiest of family relationships. Many families with LFS have to find a way to adjust to their
July is Sarcoma Awareness Month and there is a LONG way to go on the road to awareness. Mere weeks after having a Fibrohistiocytic Tumor
That is a question that many women ask, yet for Li Fraumeni Syndrome ladies, there are even more questions. According to the American Cancer Society
