John was an LFS patient, and he was passionate about LFS awareness. John established the first ever online Li-Fraumeni syndrome patient support group, at a website called MD Junction, and was the first president of the LFS Association. In 2016, Jen Mallory said about John, “he has been an integral behind the scenes force and advocate for support and advocacy in our community. We worked together closely founding LFSA and he supported my passion for support and when I decided to focus on support through a new direction with Living LFS.” John passed from glioblastoma in 2018.