In 2002, I noticed a lump on the innerside of my upper left leg. The doctor thought of scar tissue caused by a mosquito bite,
by Ilonka Dee Dylan broke his arm two months ago. About a year and a half ago, we gave Dylan a skateboard after he nagged
$36,320 in hardship grants awarded in 2021! Living with a genetic disease like Li-Fraumeni Syndrome (LFS) has devastating physical and emotional costs and losses. To
By Ilonka Dee – Between March 2012 and March 2020, I underwent chemotherapy 3 times with in total 26 chemo rounds. Radiotherapy twice; 53 sessions,
by Andi Last Recently, ABC Television’s The Good Doctor featured a woman receiving the news that she has LFS: “It’s called Li-Fraumeni syndrome, LFS. An
Support LFS Hardship Grants by ordering a 2022 LFS Awareness Day Elephant Shirt! But… why elephants? The TP53 gene is a tumor-suppressor gene, often called
History of Living LFS 2021 Living LFS establishes March as Li-Fraumeni Syndrome Awareness Month and March 20th as Li-Fraumeni Syndrome Awareness Day. The 20th is
NEW: In 2021, mark Li-Fraumeni Syndrome Awareness Month with us throughout the month of March! $530 LFS hardship grants to be awarded on Li-Fraumeni Syndrome
