Just Keep Sluggin! Brandi’s Sarcoma Update.

A few years ago, Brandi shared her experience of sarcoma with us. In 2009, she was only 29, 5 months pregnant with her daughter when she noticed a lump on her thigh. Sarcoma. Only about 1% of all cancers are sarcomas. Sarcomas can be found in any connective tissue, bone, blood vessels, fat, muscles or nerves. Many sarcomas(like Brandi’s) present as a painless lump but as they grow they can push on nerves and cause pain. LFS increases the risk of growing a sarcoma and it’s important to pay attention to any lumps or bumps that grow or change and have them looked at by a physician. In Brandi’s case, having a sarcoma and breast cancer at an early age led to the recommendation that she be tested for LFS. She was gracious enough to sit down with us and tell us a little bit about Sluggin’ it out with Sarcoma. I chatted with her a couple days ago to see how she has been doing and if she’d share a little about what’s new. In true LFS fashion she responded quickly with,

Yes definitely! That would be awesome. Cancer wise I had DCIS stage 0 ended up having a double mastectomy. Found pre-cancerous tumors in my uterus and had a hysterectomy but left my ovaries to keep me company.
Hopefully no more after that LOL
Otherwise everyday is a good day. ❤
Here’s to many more good days! If you’d like to read more about how Brandi found her sarcoma and about LFS, click the link below!

Perspective:P53 and Me in the New England Journal of Medicine

Living with LFS has many challenges, stresses, and choices. We do not get to choose our DNA or IF we will get cancer. We can choose whether or not to screen or make lifestyle choices that affect our health. In a recent perspective article in the New England Journal of Medicine, Shekinah N.C. Elmore, M.D. shares her experience with LFS as a patient, medical student and doctor. Most importantly, Dr. Elmore discusses the devastation, the emotional aspects of learning to live as an “Onco-mutant” and how it changed her outlook on life and health care.  The link below will take you to the article, P53 and Me.

P53 and ME by Shekinah N.C. Elmore, M.D. New England Journal of Medicine