Li-Fraumeni Syndrome (LFS)
Li-Fraumeni Syndrome (LFS) is linked to a mutation in the TP53 tumor suppressor gene. There are many types of TP53 mutations. People with this mutation have a higher risk of developing cancer over their lifetime. LFS affects each individual differently, even within the same family. Some families with LFS have higher rates of cancer incidence, while others do not.
Living LFS is active and public on social media. We welcome you to become a part of any of our public online communities that suit your preferences.
We have separate private Facebook groups specifically for those living with LFS and for those who supporting someone living with LFS.
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Mission Statement
We encourage, empower, and educate those living with Li-Fraumeni Syndrome by connecting them with care, resources, and others who are Living LFS.
Latest Blog Posts
March is Li-Fraumeni Syndrome Awareness Month: Families With Devastating Cancer Condition to Receive Financial Relief
FOR IMMEDIATE RELEASE: February 21, 2025 Contact: Andi Last President, Living LFS, Inc. andi@livinglfs.org download as PDF March 2025 is the fifth annual Li-Fraumeni Syndrome
Let's Turn $40K into $80K for Families Battling Cancer
As Li-Fraumeni Syndrome Awareness Month approaches in March, we are gearing up for our fifth year of awarding LFS Hardship Grants on March 20th: LFS
Award-Winning Journalist and Author Lawrence Ingrassia to Join Family Camp for Those Impacted by Genetic Cancer Disorder
download as pdf FOR IMMEDIATE RELEASE: July 24, 2024 Non-profit organization Living LFS is excited to welcome author Lawrence Ingrassia to its upcoming family camp
