Li-Fraumeni Syndrome (LFS)
Li-Fraumeni Syndrome (LFS) is linked to a mutation in the TP53 tumor suppressor gene. There are many types of TP53 mutations. People with this mutation have a higher risk of developing cancer over their lifetime. LFS affects each individual differently, even within the same family. Some families with LFS have higher rates of cancer incidence, while others do not.
Living LFS is active and public on social media. We welcome you to become a part of any of our public online communities that suit your preferences.
We have separate private Facebook groups specifically for those living with LFS and for those who supporting someone living with LFS.
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Mission Statement
We encourage, empower, and educate those living with Li-Fraumeni Syndrome by connecting them with care, resources, and others who are Living LFS.
Latest Blog Posts
Families With High Cancer Risk Get Financial Relief During Li-Fraumeni Syndrome Awareness Month
download as PDF FOR IMMEDIATE RELEASE: February 23, 2024 Andi LastPresident, Living LFS, Inc.andi@livinglfs.org March 2024 marks the fourth annual Li-Fraumeni Syndrome Awareness Month, and
Port-a-Cath Pros and Cons: Should You Get a Port?
by Dr. James Lowe I am the father of a Li-Fraumeni syndrome son who died from recurrent medulloblastoma 3.5 years ago. I also am an
2023 Year in Review
It’s time to look back with you and celebrate all that we achieved together for the Li-Fraumeni syndrome community in 2023: Let’s Make 2024 Strong!